ELKHART, Ind. – Terry McMillen, driver of the Amalie Oil InstiGator Funny Car and the Torco Nitro Top Fuel Dragster will partner with the Tuberous Sclerosis Alliance (http://tsalliance.org/) on a campaign to raise awareness about tuberous sclerosis complex (TSC).
TSC is a genetic disorder that causes tumors to form in many different organs, primarily in the brain, eyes, heart, kidney, skin and lungs. TSC affects at least two children born every day. Current estimates place TSC-affected births at one in 6,000, approximately 50,000 in the US, with nearly 1 million people worldwide. Currently there is no cure.
McMillen became aware of TSC after hearing the story of Stone Wendel, the 10-year-old son of George and Becky Wendel. “I remember speaking with George not too long ago,” McMillen said. “He shared with me what the last 10 years have been like with Stone. Then, I remembered what it was like when I lost my son Jason. While Jason didn’t have TSC, we were constantly searching for answers and we often felt helpless. Thanks to groups like the TS Alliance, support and information is readily available when families need it most.”
While the TS Alliance is committed to finding a cure for tuberous sclerosis complex, it is also dedicated to improving the lives of those affected. Founded in 1974 by four mothers that wanted to generate awareness, pursue knowledge and provide hope to those that shared the common bond of TSC, the TS Alliance has grown to more than 33 community alliances in the US, one online community, and local support groups with more than 1,500 volunteers.
“We’re very excited about teaming up with Terry McMillen and his race teams,” said Kari Luther Carlson, acting CEO of the TS Alliance, “This is a great opportunity to create an awareness of TSC to the drag racing fans across America.”
McMillen and the TS Alliance are looking forward to hosting a special awareness event during the Torco Race Fuels President’s Cup Nationals at the Maryland International Raceway, September 28-30. Details of the event will be announced in the coming weeks.
To learn more about the TS Alliance visit http://tsalliance.org or call toll free 1.800.225.6872
