ELKHART, Ind. – Terry McMillen, driver of the Amalie Oil InstiGator Funny Car and the Torco Nitro Top Fuel Dragster will partner with the Tuberous Sclerosis Alliance (http://tsalliance.org/) on a campaign to raise awareness about tuberous sclerosis complex (TSC).
TSC is a genetic disorder that causes tumors to form in many different organs, primarily in the brain, eyes, heart, kidney, skin and lungs. TSC affects at least two children born every day. Current estimates place TSC-affected births at one in 6,000, approximately 50,000 in the US, with nearly 1 million people worldwide. Currently there is no cure.
McMillen became aware of TSC after hearing the story of Stone Wendel, the 10-year-old son of George and Becky Wendel. “I remember speaking with George not too long ago,” McMillen said. “He shared with me what the last 10 years have been like with Stone. Then, I remembered what it was like when I lost my son Jason. While Jason didn’t have TSC, we were constantly searching for answers and we often felt helpless. Thanks to groups like the TS Alliance, support and information is readily available when families need it most.”